about that spoon . . .

I’ve taken to wearing a spoon pendant lately. You might have noticed it in the video I made for my GoFundMe campaign to support my participation in the Futurescapes Writers’ Workshop. The story behind the spoon is a simple one, but it’s important. The spoon pendant is actually a pin that my friend Wendy Wagner […]

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not so widespread panic

Blogging about my health seems to come in waves. I want to let people know how I’m doing, but the news usually isn’t all that great and I don’t want this space to become nothing but a boring pity party and litany of symptoms. Plus, there’s more to me and my life than dysautonomia, though […]

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naming limitations

There’s an expression I heard (a lot) while I was growing up: “Name your limitations, and they’re yours.” Now, this is a keen concept: If you argue for why you can’t do this or that, then you can be pretty sure that you’re constructing a box for yourself. It’s right on par with the Henry […]

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on Passover, curling, and dysautonomia

Sundown tonight marks the beginning of Passover. And today, from sunrise until sundown, is the traditional Fast of the First-Born. I’m a first-born, but as on every other fasting day, I’m having to skip it because of dysautonomia. I’ve tried fasting on these holy days before, and to say that it’s extremely difficult is an […]

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What I learned today: self-care

We’ve been in the midst of a heat wave, and high temperatures have long been a serious problem for me and my health. I had four deadlines to meet on Monday. I got one out of the way Sunday evening. The second I met Monday morning, and I got about half-way through the third one […]

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heat wave and best intentions

Today, I’d hoped to announce?finally?the launch of The Indie Pub podcast. That’s not going to happen. We’re at the beginning of a heat wave here in Portland, and I’m laying low for a bit. I’ve found that my ideal temperature is around 58 degrees F. I start to have trouble when the thermometer sails past […]

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fragile

The past several weeks have been quite good indeed. I felt like I was coming out from under the foggy cloud of medication side effects and was finally making real progress with my new dysautonomia management plan. To me, the biggest indicator of this was when I realized I’d gotten my stride back. My father’s […]

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